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Content type: Long Read
Table of contentsIntroductionWeighing the (potential) benefits with the risksPrivacy rights and the right to healthThe right to healthPrivacy, data-protection and health dataThe right to health in the digital contextWhy the drive for digitalImproved access to healthcarePatient empowerment and remote monitoringBut these same digital solutions carry magnified risks…More (and more connected) dataData leaks and breachesData sharing without informed consentProfiling and manipulationTools are not…
Content type: Advocacy
In PI’s view the Revised Draft is a significant step back to the already weakened previous draft. Among the many concerns that we highlight in this analysis, we are particularly dismayed by the deletion of a principle on privacy, data protection and confidentiality in Article 3. In all previous drafts, the inclusion of such provision reflected the importance that data protection and privacy plays in any effective, modern public health policies. Failing to keep a specific principle on privacy…
Content type: Advocacy
Dejusticia, Fundación Karisma, and Privacy International submitted a joint stakeholder report on Colombia to the 44th session of the Universal Periodic Review at the UN Human Rights Council.Our submission raised concerns regarding the protection of the rights to freedom of expression and opinion, to privacy, and to personal data protection; the shutdown of civil society spaces; protection of the right to protest; and protection of the rights of the Venezuelan migrant and refugee population.…
Content type: Advocacy
Our submission focussed on the evolving impacts of (i) automated decision-making, (ii) the digitisation of social protection programmes, (iii) sensitive data-processing and (iv) assistive technologies in the experiences and rights of people with disabilities.We called on the OHCHR to:Examine the impact that growing digitisation and the use of new and emerging technologies across sectors has upon the rights of persons with disabilities;Urge states to ensure that the deployment of digital…
Content type: Advocacy
Privacy International contributed to the UNSR's report by submitting information on the work we have done as well as our Network of partners as we’ve monitored and responded to developments associated with the use of data and technology in the health care sector by governments and companies.
Content type: Advocacy
Privacy International (PI) notes the Bureau’s text of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”).
PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process. In February 2023, we intervened during the briefing organised by the INB bureau and published our comments on the zero draft of the WHO CA…
Content type: Advocacy
Privacy International (PI) welcomes the zero draft of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”). PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process.
PI believes that the zero draft offers a good basis for negotiations. In particular, we welcome the inclusion of a provision on…
Content type: Advocacy
PI welcomes the opportunity to engage once again with the mandate by submitting comments, evidence, and recommendations to the UN Special Rapporteur on the right to health, Ms. Tlaleng Mofokeng. We hope that our input will contribute to the forthcoming report, “Digital innovation, technologies and the right to health”.
Technology has contributed significantly to the planning and delivery of health information, services and care. We have seen the use of data and technology across the healthcare…
Content type: Advocacy
Privacy International (PI) notes the conceptual zero draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”). PI has sought to closely follow and engage with the discussions leading up to the draft CAII, despite the significant limitations to civil society participation in the process. In September 2022 we submitted our observations to the working draft of the WHO CAII. This analysis builds upon those observations.
Broadly, PI welcomes the content of the…
Content type: Advocacy
Privacy International welcomes the opportunity to provide written input on the working draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”) published on 13 July 2022.
This submission is based on our research and assessment of data-reliant and tech-intensive measures deployed by governments and companies in response to Covid-19 and its aftermath, which documented how these measures impacted people’s fundamental rights and freedoms, including the right to…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
What are they?
Short Message Services (SMS) are being used in mobile health (MHealth) initiatives which aim to deliver crucial information to expecting and new mothers. These initiatives are being implemented in developing countries experiencing a large percentage of maternal and…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: Long Read
As we see Covid-19 vaccination programmes beginning around the world, for the first time since the start of the pandemic there seems to be a light at the end of the tunnel as the fruition of truly unrivalled global scientific efforts has given us hope of saving lives, reopening our societies, and going back to “normal”.
This great moment of hope must not be seen opportunistically as yet another data grab. The deployment of vaccines, and in particular any “immunity passport” or certificate…
Content type: Explainer
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…
Content type: Explainer
Definition
An immunity passport (also known as a 'risk-free certificate' or 'immunity certificate') is a credential given to a person who is assumed to be immune from COVID-19 and so protected against re-infection. This 'passport' would give them rights and privileges that other members of the community do not have such as to work or travel.
For Covid-19 this requires a process through which people are reliably tested for immunity and there is a secure process of issuing a document or other…
Content type: News & Analysis
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Long Read
Photo by David Werbrouck on Unsplash
This is an ongoing series about the ways in which those searching for abortion information and procedures are being traced and tracked online. This work is part of a broader programme of work aimed at safeguarding the dignity of people by challenging current power dynamics, and redefining our relationship with governments, companies, and within our own communities. As an enabling right, privacy plays an important role in supporting the exercise of…