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Content type: Long Read
Table of contentsIntroductionWeighing the (potential) benefits with the risksPrivacy rights and the right to healthThe right to healthPrivacy, data-protection and health dataThe right to health in the digital contextWhy the drive for digitalImproved access to healthcarePatient empowerment and remote monitoringBut these same digital solutions carry magnified risks…More (and more connected) dataData leaks and breachesData sharing without informed consentProfiling and manipulationTools are not…
Content type: Advocacy
Privacy International (PI) welcomes the opportunity to provide input to the forthcoming report the Special Rapporteur on contemporary forms of racism, racial discrimination, xenophobia and related tolerance to the 56th session of Human Rights Council which will examine and analyse the relationship between artificial intelligence (AI) and non-discrimination and racial equality, as well as other international human rights standards.AI applications are becoming a part of everyday life:…
Content type: Advocacy
In PI’s view the Revised Draft is a significant step back to the already weakened previous draft. Among the many concerns that we highlight in this analysis, we are particularly dismayed by the deletion of a principle on privacy, data protection and confidentiality in Article 3. In all previous drafts, the inclusion of such provision reflected the importance that data protection and privacy plays in any effective, modern public health policies. Failing to keep a specific principle on privacy…
Content type: Advocacy
In August 2023, the UK Westminster Women and Equalities Committee launched a call for evidence into a short inquiry on women’s reproductive health.We submitted a response highlighting the increasing management of women’s reproductive healthcare through digital health initiatives. We raised concerns that these technologies can be privacy-invasive and result in highly sensitive personal information being shared in unexpected and potentially dangerous ways. We encouraged the Committee to ensure…
Content type: Advocacy
Dejusticia, Fundación Karisma, and Privacy International submitted a joint stakeholder report on Colombia to the 44th session of the Universal Periodic Review at the UN Human Rights Council.Our submission raised concerns regarding the protection of the rights to freedom of expression and opinion, to privacy, and to personal data protection; the shutdown of civil society spaces; protection of the right to protest; and protection of the rights of the Venezuelan migrant and refugee population.…
Content type: Long Read
Introduction
The 28th of September marks International Safe Abortion Day. It remains a day necessary to mobilise and raise awareness of the continued struggles women and girls face when accessing reproductive healthcare, including access to safe abortion. Across the world, abortion continues to be criminalised, restricted and in some places under attack. All of which constitute severe obstacles for women and girls to fully exercise their human rights, particularly their right to privacy, which…
Content type: Advocacy
Our submission focussed on the evolving impacts of (i) automated decision-making, (ii) the digitisation of social protection programmes, (iii) sensitive data-processing and (iv) assistive technologies in the experiences and rights of people with disabilities.We called on the OHCHR to:Examine the impact that growing digitisation and the use of new and emerging technologies across sectors has upon the rights of persons with disabilities;Urge states to ensure that the deployment of digital…
Content type: Advocacy
Privacy International contributed to the UNSR's report by submitting information on the work we have done as well as our Network of partners as we’ve monitored and responded to developments associated with the use of data and technology in the health care sector by governments and companies.
Content type: Advocacy
Privacy International (PI) notes the Bureau’s text of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”).
PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process. In February 2023, we intervened during the briefing organised by the INB bureau and published our comments on the zero draft of the WHO CA…
Content type: Advocacy
Privacy International (PI) welcomes the zero draft of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”). PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process.
PI believes that the zero draft offers a good basis for negotiations. In particular, we welcome the inclusion of a provision on…
Content type: Advocacy
PI welcomes the opportunity to engage once again with the mandate by submitting comments, evidence, and recommendations to the UN Special Rapporteur on the right to health, Ms. Tlaleng Mofokeng. We hope that our input will contribute to the forthcoming report, “Digital innovation, technologies and the right to health”.
Technology has contributed significantly to the planning and delivery of health information, services and care. We have seen the use of data and technology across the healthcare…
Content type: Advocacy
Privacy International (PI) notes the conceptual zero draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”). PI has sought to closely follow and engage with the discussions leading up to the draft CAII, despite the significant limitations to civil society participation in the process. In September 2022 we submitted our observations to the working draft of the WHO CAII. This analysis builds upon those observations.
Broadly, PI welcomes the content of the…
Content type: Advocacy
Privacy International welcomes the opportunity to provide written input on the working draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”) published on 13 July 2022.
This submission is based on our research and assessment of data-reliant and tech-intensive measures deployed by governments and companies in response to Covid-19 and its aftermath, which documented how these measures impacted people’s fundamental rights and freedoms, including the right to…
Content type: News & Analysis
The relationship between privacy and access to abortion care
In 1973, in the state of Texas, it was a criminal offence to “procure or attempt” an abortion except if the purpose was “saving the life of the mother.” This law was enacted in 1854 by the Texas state legislature, and was part of a wave of provisions criminalising access to abortion care that was gaining ground across the U.S in the mid-1800s. It is worth highlighting that these laws were being passed at a time when women in the U.S…
Content type: Advocacy
In line with WHO's commitment to a human rights-based approach to health, Privacy International believes the following elements procedural and substantive elements must be included:
Open, inclusive and multi-stakeholder process
The drafting and negotiation process of this international instrument must allow for the meaningful participation of a wide range of civil society organisations (CSOs) and reflect the commitment from the WHO and Member States to receive and respond to CSOs…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
What are they?
Short Message Services (SMS) are being used in mobile health (MHealth) initiatives which aim to deliver crucial information to expecting and new mothers. These initiatives are being implemented in developing countries experiencing a large percentage of maternal and…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
Image found here.
Founded in 1959, Bounty UK Limited markets itself as an information service for pregnant women and new mothers. Prior to the pandemic, it was best known for distributing “Bounty packs” of free samples of baby products to pregnant women at midwife appointments, to new mothers on maternity wards in the UK and through its digital presence via its website and app. Bounty representatives also sold new born photography packages to new mothers at the hospital bedside. Bounty entered…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: Long Read
An edited version of this article was originally published on the EDRi website in September 2020.
Introduction
Monopolies, mergers and acquisitions, anti-trust laws. These may seem like tangential or irrelevant issues for privacy and digital rights organisations. But having run our first public petition opposing a big tech merger, we wanted to set out why we think this is an important frontier for people's rights across Europe and indeed across the world.
In June, Google notified the…
Content type: Advocacy
Introduction
In February 2020, the Australian Competition and Consumer Commission (ACCC) commenced an investigation into the proposed acquisition of Fitbit by Google, which was originally announced in November 2019.
In March 2020, we made a submission to the ACCC, arguing that the acquisition would very likely have onerous implications for both consumers and markets. We asked the Australian regulator to apply strict scrutiny and not let hisory once again repeat itself. We concluded that the…
Content type: Call to Action
Google wants to know everything about you.
It already holds a massive trove of data about you, but by announcing its plans to acquire the health and fitness tracker company Fitbit, it now clearly wants to get its hands on your health too. We don’t think any company should be allowed to accumulate this much intimate information about you. This is why we’re trying to stop its merger with Fitbit.
Google and Fitbit need the European Commission’s approval before they can merge. The merger would…
Content type: Long Read
Covid Apps are on their way to a phone near you. Is it another case of tech-solutionism or a key tool in our healthcare response to the pandemic? It’s fair to say that nobody quite knows just yet.
We’ve been tracking these apps since the early days. We’ve been monitoring Apple and Google closely, have been involved in the UK’s app process, our partners in Chile and Peru have been tracking their governments’ apps, and more.
Of course privacy concerns arise. But only a simplistic analysis would…
Content type: Long Read
On 12 April 2020, citing confidential documents, the Guardian reported Palantir would be involved in a Covid-19 data project which "includes large volumes of data pertaining to individuals, including protected health information, Covid-19 test results, the contents of people’s calls to the NHS health advice line 111 and clinical information about those in intensive care".
It cited a Whitehall source "alarmed at the “unprecedented” amounts of confidential health information being swept up in the…
Content type: Advocacy
Background
In February 2020, the Australian Competition and Consumer Commission (ACCC) commenced an investigation into the proposed acquisition of Fitbit by Google, which was originally announced in November 2019.
Google, whose parent company, Alphabet, in 2018, generated 85% of its $136.22 billion in revenue from delivering targeted advertisements, has a past of competition law infringements in the European Union. Fitbit is a company that produces and sells health tracking technologies and…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…